The Joint Epilepsy Council is an organisation which represents the 26 main epilepsy charities to government and the wider public in the United Kingdom. The website contains links to many of its member charities

National Society for Epilepsy is the largest medical charity for the care and treatment of people with epilepsy. They have a telephone help line on +44 (0)1494601400 from overseas or 01494 601400 in the UK

Epilepsy Action is the working name of the British Epilepsy Associaton the largest membership epilepsy charity in England and Northern Ireland. They have a free help line on 0808 800 5050 from the UK or +44 113 210 8850 from other countries. They have an e-mail help service on This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Epilepsy Bereaved was formed in the early 1990s to provide information about S.U.D.E.P (Sudden unexpected death from epilepsy) which is responsible for about one thousand fatalities each year. They give help and support to the bereaved and campaign to ensure that the extent of the problem is understood at all levels of government

Epilepsy Scotland is the main epilepsy charity in Scotland and maintains a help line on 0141 427 5225

The International Bureau for Epilepsy has members in many countries and offices in Heemstede in the Netherlands and Dublin in the Republic of Ireland. The bureau publish information and arrange conferences in many parts of the world at which delegates can learn about epilepsy treatment and social issues

Epilepsy Youth in Europe  is a useful site for young people to find out what is happening about epilepsy and find contributions from many countries. This site is well worth a visit

National Centre for Young People with Epilepsy provide a helpline for parents and carers at www.ncype.org.uk/epilep

 Live well with epilepsyThis website has been created for people who want to find out more about epilepsy and hear from people who have learnt to live well with epilepsy

Long Term Conditions Delivery Support Team contains a commissioning resource pack for epilepsy  and a full report of the Better Care conference held in London in February

.