For our October/November /December 2015 newsletter click HEREJuly/August/September newsletter click here and April/May/June 2015 newsletter click HERE
The following news items about epilepsy medication have been advised by Epilepsy Action
14 August 2015
The following medicines are currently out of stock:
- Carbagen 100 mg – 28 tablet and 84 tablet packs
- Carbagen 200 mg – 28 tablet packs
13 August 2015
Some packs of Teva pregabalin 75 mg have the wrong strength printed on part of the pack. On affected packs the strength is printed incorrectly, as 25 mg instead of 75 mg, in one position on the foil (see picture below).
6 August 2015
The Medicines and Healthcare products Regulatory Authority (MHRA) has suspended the licence for the following epilepsy medicines made by Dr Reddy's Laboratories (UK) Limited:
- Levetiracetam Dr Reddy's 250 mg film-coated tablets
- Levetiracetam Dr Reddy's 500 mg film-coated tablets
- Levetiracetam Dr Reddy's 750 mg film-coated tablets
- Levetiracetam Dr Reddy's 1000 mg film-coated tablets
The Department of Work and pensions have published a Newsletter with articles on Later Life.The letter can be viewed here DWP newsletter on Later LifeTo subscribe, or provide contributions to
Share your patient experience of community hospitals
|If you, or a family member has been treated in a community hospital within the last two years, you may consider getting involved and helping to improve the service for others.
The following hospitals all have vacancies on their Patient Experience Groups
If you live on the Isle of Sheppey, there is an event on September 10th for people to share their experiences of Sheppey Hospital. There is a similar event in Gravesend on October 13th about Gravesham Community Hospital.
Strengthening care for epilepsy
On 26th February 2015 there was a debate in Parliament on epilepsy. A three-hour slot was scheduled for the Backbench debate, representing an enormous opportunity to raise the profile of epilepsy issues and to improve provision. The report of the proceedings in which Laura Sandys then MP for Thanet South took a major part are available here
Kent Police are warning the public to beware of distraction theft where one person pretends to need help whilst another steals property see
The latest survey by Epilepsy Action into the level of priority given by Health and Wellbeing Boards and Clinical Commissioning Groups(CCGs) who comission health services for most conditions including epilepsy shows a bleak picture with only 10% of the 204 CCGs responding claiming to have a written needs assesment of the health and social care needs of people with epilepsy. Our assessment of the replies of CCGs in East Kent indicate that only one South Kent Coastal had such a statement. To see the national picture click here or to read the conclusions of Epilepsy Action click here
The Britsh Medical Journal has published a report by eminent Epileptologists including John S. Duncan into Epilepsy Surgery. To read it click here
Changes to special educational needs system begin
On 1 September a new law came into place in England (The Children and Families Act), which means the way children and young people with special educational needs (SEN)receive support has changed. The changes include replacing the statement of special educational needs with an Education, Health and Care plan, and SEN support for children in mainstream school instead of school action/action plus.
Independent Support Kent
The government is funding a two year programme to provide additional support to young people and parents during the implementation of the SEND reforms. Independent Support is an additional service that will work with, and complement the role of the Information, Advice and Support Service.
In Kent the Independent Support Service is provided by the Kent Disabled Children’s ParentDriven Consortium with M4S acting as the lead agency.
An independent supporter can help parents of children and young people aged 0-25 and young people themselves aged 16-25. They will work directly with young people and the parents of children being assessed for an EHC plan, this will include:
Parents/young people going through the assessment process for the first time
Children with a statement converting to an EHC plan
Young people with an LDA converting to a plan
Visit Contact ba Family education pages for detailed information about these changes, including a series of factsheets they have developed to help you understand more about what they could mean for your child. And don’t forget, their education specialist advisers are available from Monday-Friday, 9.30am-5.00 pm to answer your query. Call freephone helpline on 0808 808 3555, or post a query on Facebook. They can help on any aspect of education in England and Wales
Keep up to date @Epilepsyhere on Twitter
Epilepsy Medication and Pregnancy
Dr Rosemary Leonard asks if GPs are failing to warn their pregnant patients about the risks of one of the UK's most widely-used epileptic drugs.
Concern is growing that mothers-to-be are not aware enough of the dangers of an epilepsy drug known to cause severe abnormalities in foetuses.
Sodium valproate has long been known to increase babies' risk of cleft palate and spina bifida.
Now new research has revealed some babies exposed to the drug also have mental problems and a survey found 25% of mothers were unaware of the risks.The drug's manufacturers insist they have always warned of the dangers.
Epilepsy Action’s campaign team launched a new report in the UK parliament’s House of Commons.
“Epilepsy services are not good enough in many areas of the UK”, said Stacey Rennard, Epilepsy Action’s campaign manager. “Our report draws attention to these shortcomings. We want people to ACT now!” she said.
“The report and its findings were very well received by all who attended”, she continued. The report’s findings were “worrying”, she said. “More needs to be done by healthcare providers and commissioners to tackle inconsistencies”.
The report comes from information from acute trusts, healthcare commissioners, local authorities and almost 1,000 people with epilepsy.
The report found that people with epilepsy are not getting access to specialist nurses. People with epilepsy are waiting too long to see a specialist. People with difficult to control epilepsy are not being referred for other treatments.
Epilepsy Action’s Vice President, Laura Sandys MP, hosted the event. Members of Parliament, Members of the House of Lords, clinicians, key organisations and people with epilepsy were in attendance to hear the findings of the report, and Epilepsy Action’s recommendations to improve services.
There were introductory speeches, followed by discussions of the report’s findings.