The following news items about epilepsy medication have been advised by Epilepsy Action
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Strengthening care for epilepsy
Delegates to the World Health Assembly held in Switzerland in May endorsed a resolution urging Member States to strengthen their ongoing efforts in providing care for people with epilepsy. Although affordable treatment for epilepsy exists, up to 90% of people with the condition may not be properly diagnosed or treated in resource-poor settings. The resolution highlights the need for governments to formulate, strengthen and implement national policies and legislation to promote and protect the rights of people with epilepsy. It also stresses the need to reinforce health information and surveillance systems to get a clearer picture of the burden of disease and to measure progress in improving access to care.
Delegates emphasized the importance of training of non-specialist health-care providers as key to reducing the epilepsy treatment gap. In low- and middle-income settings, strategies to improve access and affordability of antiepileptic medicines should be a priority. Countries are encouraged to undertake public awareness activities to reduce misconceptions about epilepsy and encourage more people to seek treatment. The research capacity of low- and middle-income countries should be built through expanded academic collaboration and establishment of centres of excellence.
The resolution calls on the WHO Secretariat to continue to lead and coordinate support to Member States in addressing the global burden of epilepsy so that people with epilepsy can receive timely treatment and can benefit from educational and occupational opportunities, free from stigma and discrimination.
On 26th February 2015 there was a debate in Parliament on epilepsy. A three-hour slot was scheduled for the Backbench debate, representing an enormous opportunity to raise the profile of epilepsy issues and to improve provision. The report of the proceedings in which Laura Sandys then MP for Thanet South took a major part are available here
Kent Police are warning the public to beware of distraction theft where one person pretends to need help whilst another steals property see
Medical Exemption Certificates
A new system governing these certificates was introduced in 2002. Under the new system, people with long-term conditions are still entitled to collect their prescriptions free of charge.To apply for a Medical exemption certificate ask your doctor for an FP92A form. Your GP, hospital or service doctor will sign the form to confirm that your statement is correct. At your GP's discretion, a member of the practice who has access to your medical records can also sign the form.Your certificate will be valid from one month before the date that the NHS Business Authrority receives the application form.The Medical Exemption certificate lasts for five years and then needs to be renewed. You may receive a reminder that your certificate needs to be renewed. If you don't receive a reminder, it is your responsibility to ensure that it is renew
The Britsh Medical Journal has published a report by eminent Epileptologists including John S. Duncan into Epilepsy Surgery. To read it click here
Changes to special educational needs system begin On 1 September a new law came into place in England (The Children and Families Act), which means the way children and young people with special educational needs (SEN)receive support has changed. The changes include replacing the statement of special educational needs with an Education,Health and Care plan, and SEN support for children in mainstream school instead of school action/action plus Visit Contact a Family education pages for detailed information about these changes, including a series of factsheets they have developed to help on Facebook. They can help on any aspect of your child's education and advisers are available from Monday-Friday, 9.30am-5.00 pm to answer your query.
The government is funding a two year programme to provide additional support to young people and parents during the implementation of the SEND reforms. Independent Support is an additional service that will work with, and complement the role of the Information, Advice and Support Service.
In Kent the Independent Support Service is provided by the Kent Disabled Children’s ParentDriven Consortium with M4S acting as the lead agency.
An independent supporter can help parents of children and young people aged 0-25 and young people themselves aged 16-25. They will work directly with young people and the parents of children being assessed for an EHC plan, this will include:
Parents/young people going through the assessment process for the first time
Children with a statement converting to an EHC plan
Young people with an LDA converting to a plan
To find out more call 0300 011 0151
Epilepsy Medication and Pregnancy
Dr Rosemary Leonard asks if GPs are failing to warn their pregnant patients about the risks of one of the UK's most widely-used epileptic drugs oncern is growing that mothers-to-be are not aware enough of the dangers of an epilepsy drug known to cause severe abnormalities in feotuses.Sodium valproate has long been known to increase babies' risk of cleft palate and spina bifida.Now new research has revealed some babies exposed to the drug also have mental problems and a survey found 25% of mothers were unaware of the risks.The drug's manufacturers insist they have always warned of the dangers.For full information on Pregnancy for people with epilepsy ask us for theleaflet or visit the Epilepsy Society website
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